Affordable Health Care Act | What It Means To My Family

I’m going to start this by reminding you that I’m a sportscaster — not a political beat writer. I have my passions and politics are not one of them. That means I have a very (and I mean very) limited understanding of the Affordable Health Care Act which was upheld by the U.S. Supreme Court. All I do know is that it helps my family.

Tim Lewis & Cole Prill

My nephew and me at a fundraising event for the Bleeding Disorder Foundation of Washington

My nine-year-old nephew Cole is a severe hemophiliac. That means his blood doesn’t clot correctly. He has to infuse himself (literally stick himself with a needle) with a blood clotting agent three times a week to live a “normal” life. Hemophilia is defined in medical terms as a ”pre-existing condition.” That means my nephew had no chance of ever getting health insurance or life insurance. No one wanted to touch him. It isn’t his fault — he was born this way. It isn’t my sister’s fault either. She didn’t knowingly spread hemophilia, because it doesn’t run in our family. A mutated gene is to blame, and that’s Mother Nature’s fault.

The way I understand it now, Cole can now get health care. That means my sister’s burden of paying the high costs for his treatment (up to $150,000 a year) can finally be eased. It also means that my nephew can gets the coverage he deserves, which hopefully results in long, healthy life for one of my favorite people on the planet (you’d fall in love with him too if you had the chance to meet him).

My nephew and my sister, who eventually became the president of the Bleeding Disorder Foundation of Washington, are the face of Affordable Health Care in Seattle today. They’re on the front page (print and online) of The Seattle Times, sharing their story with thousands of people.

I understand there are arguments on both sides of the Affordable Health Care Act, and I understand I’m opening a can of worms I don’t care to debate. All I know is the Supreme Court’s ruling benefits my family and that’s more than enough for me.

Comments

  1. Tovey says:

    This is really sweet. Cole is very lucky to have you as an Uncle. Way to rock my world Chief Justice Roberts!

  2. Skybridge says:

    In the richest country in the world, it is ridiculous we have to fight for decent healthcare, it should be a basic right, everyone should have access to it. Thank you for reminding us in human terms how important available healthcare is for everyone.

  3. Jarvis says:

    This helps people who are employed in industries that have poor health benefits. Glad the Act became a reality.

  4. Insane! I’m a Canadian hemophiliac and I pay nothing for my factor, aside from provincial taxes. I can’t imagine what my life would be like if I had to pay for my factor. I dose with 3k IU there to four times per week!

    • Tim Lewis says:

      Ian,

      Thank you very much for taking the time to leave a comment. My nephew also infuses himself three to four times per week, so the cost of managing his hemophilia is through the roof. It’s crazy to think that you and other hemophiliacs in Canada don’t have to pay for your factor. That’s awesome! I know it was a huge celebration for my family when the act was upheld by the Supreme Court in June. My nephew is the greatest little boy in the world, and we all want only the best for him.

      Tim

Let me know what you think!